Medical - Surgical Nursing Journal

Published by: Kowsar

Coping Behaviors in Parents of Children with Thalassemia major

Fatihe Kermansaravi 1 , Fereshteh Najafi 1 , * and Somaye Rigi 2
Authors Information
1 Community Nursing Research Center, Zahedan University of Medical Sciences, Zahedan, IR Iran
2 Scientific Research Center, Zahedan University of Medical Sciences, Zahedan, IR Iran
Article information
  • Medical - Surgical Nursing Journal: February 2018, 7 (1); e81173
  • Published Online: November 25, 2017
  • Article Type: Research Article
  • Received: September 7, 2017
  • Accepted: November 10, 2017
  • DOI: 10.5812/msnj.81173

To Cite: Kermansaravi F, Najafi F, Rigi S. Coping Behaviors in Parents of Children with Thalassemia major, Med Surg Nurs J. 2018 ; 7(1):e81173. doi: 10.5812/msnj.81173.

Abstract
Copyright © 2017, Medical - Surgical Nursing Journal. This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/) which permits copy and redistribute the material just in noncommercial usages, provided the original work is properly cited.
1. Background
2. Methods
3. Results
4. Discussion
Acknowledgements
References
  • 1. Hockenberry MJ, Wilson D. Wong's nursing care of infants and children-E-book. Elsevier Health Sciences; 2014.
  • 2. Hassanpour Dehkordi A, Delaram M, Safdari F, Tali S, Hasheminia S, Kasiri K. Comparison of the effects of lecture and booklet methods on awareness and attention of parents of children with Thalassemia major. J Shahrekord Univ Med Sci. 2008;10(2):52-8.
  • 3. Bala J, Sarin J. Empowering Parents of Children with Thalassemia. Int J Nurs Care. 2014;2(1):22. doi: 10.5958/j.2320-8651.2.1.005.
  • 4. Salehi S, Morovati S. Coping behaviors in families with children suffering from thalassemia major and evaluating the implementation effect of nursing intervention on these behaviors. Int J Med Res Health Sci. 2016;5(2):58-63.
  • 5. Sabry N, Salama KH. Cognitive abilities, mood changes and adaptive functioning in children with β thalassaemia. Curr Psychiatr. 2009.
  • 6. Ishfaq K, Ali AA, Hashmi M. Mothers' Awareness and Experiences of Having a Thalassemic Child: A Qualitative Approach. Pak J Soc Sci. 2015;35(1).
  • 7. Mahmoodi Z, Sargolzaee M, Rashki Ghaleno A. Heart complications in patients with beta -thalassemia in the city of Zabol. J Zabol Univ Med Sci Health Serv. 2015;7(2):1-12.
  • 8. Behdani F, Badiee Z, Hebrani P, Moharreri F, Badiee AH, Hajivosugh N, et al. Psychological Aspects in Children and Adolescents With Major Thalassemia: A Case-Control Study. Iran J Pediatr. 2015;25(3). e322. doi: 10.5812/ijp.25(3)2015.322. [PubMed: 26199704]. [PubMed Central: PMC4505986].
  • 9. Bazi A, Sharifi-Rad J, Rostami D, Sargazi-Aval O, Safa A. Diabetes Mellitus in Thalassaemia Major Patients: A Report from the Southeast of Iran. J Clin Diagn Res. 2017;11(5):BC01-4. doi: 10.7860/JCDR/2017/24762.9806. [PubMed: 28658748]. [PubMed Central: PMC5483650].
  • 10. Mashayekhi F, Rafati S, Rafati F, Pilehvarzadeh M, Mohammadi-Sardo MR. A study of caregiver burden in mothers with thalassemia children in Jiroft, 2013. Modern Care J. 2014;11(3):229-35.
  • 11. Khaledi SH, Moridi G, Valiee S. Comparison the quality of life of healthy and Thalassemic children. Iran J Nurs Res. 2013;8(29):87-94.
  • 12. Nasiri M, Hosseini H, Shahmohammadi S. Mental health status in patients with Thalassemia major in Iran. J Pediatr Rev. 2014;2(1):55-61.
  • 13. Alijany-Renany H, Tamaddoni A, Haghighy-Zadeh M, Pourhosein S. The effect of using partnership care model on the quality of life in the school-age children with β-thalassemia. J Shahrekord Univ Med Sci. 2012;14(1):41-9.
  • 14. Shaligram D, Girimaji SC, Chaturvedi SK. Psychological problems and quality of life in children with thalassemia. Indian J Pediatr. 2007;74(8):727-30. [PubMed: 17785893].
  • 15. Clarke SA, Skinner R, Guest J, Darbyshire P, Cooper J, Shah F, et al. Health-related quality of life and financial impact of caring for a child with Thalassaemia Major in the UK. Child Care Health Dev. 2010;36(1):118-22. doi: 10.1111/j.1365-2214.2009.01043.x. [PubMed: 19961496].
  • 16. Sharghi A, Karbakhsh M, Nabaei B, Meysamie A, Farrokhi A. Depression in mothers of children with thalassemia or blood malignancies: a study from Iran. Clin Pract Epidemiol Ment Health. 2006;2:27. doi: 10.1186/1745-0179-2-27. [PubMed: 17020622]. [PubMed Central: PMC1599717].
  • 17. Liem RI, Gilgour B, Pelligra SA, Mason M, Thompson AA. The impact of thalassemia on southeast asian and asian indian families in the united states: Aqualitative study. Childhood. 2011;11:12.
  • 18. Prasomsuk S, Jetsrisuparp A, Ratanasiri T, Ratanasiri A. Lived experiences of mothers caring for children with thalassemia major in Thailand. J Spec Pediatr Nurs. 2007;12(1):13-23. doi: 10.1111/j.1744-6155.2007.00085.x. [PubMed: 17233664].
  • 19. Khairkar P, Malhotra S, Marwaha R. Growing up with the families of beta-thalassaemia major using an accelerated longitudinal design. Indian J Med Res. 2010;132:428-37. [PubMed: 20966522].
  • 20. Ghafoor MB, Leghari MS, Mustafa G, Naveed S. Level of Awareness about Thalassemia among Parents of Thalassaemic Children. J Rawalpindi Med College. 2016;20(3):209-11.
  • 21. Maheen H, Malik F, Siddique B, Qidwai A. Assessing Parental Knowledge About Thalassemia in a Thalassemia Center of Karachi, Pakistan. J Genet Couns. 2015;24(6):945-51. doi: 10.1007/s10897-015-9830-z. [PubMed: 25843562].
  • 22. Hashemi AS, Banaei-Boroujeni S, Kokab N. Prevalence of major depressive and anxiety disorders in hemophilic and major beta thalassemic patients. Iran J Pediatr Hematol Oncol. 2012;2(1):11-6.
  • 23. Behrouzian F, Khajehmougahi N. Relationship of coping mechanism of mothers with mental health of their major thalassemic children. Sci J Iran Blood Transfus Organ. 2014;10(4):387-93.
  • 24. Atkin K, Ahmad WIU. Family care-giving and chronic illness: how parents cope with a child with a sickle cell disorder or thalassaemia. Health Soc Care Commun. 2000;8(1):57-69. doi: 10.1046/j.1365-2524.2000.00211.x.
  • 25. Caocci G, Efficace F, Ciotti F, Roncarolo MG, Vacca A, Piras E, et al. Health related quality of life in Middle Eastern children with beta-thalassemia. BMC Blood Disord. 2012;12:6. doi: 10.1186/1471-2326-12-6. [PubMed: 22726530]. [PubMed Central: PMC3496588].
  • 26. Pouraboli B, Abedi HA, Abbaszadeh A, Kazemi M. The Burden of Care: Experiences of Parents of Children with Thalassemia. J Nurs Care. 2017;6(2). doi: 10.4172/2167-1168.1000389.
  • 27. Nikfarid L, Eezadi H, Shakoori M. Coping Behaviors of Mothers of Chronically Ill Children. Iran J Nurs. 2012;24(74).
  • 28. Patistea E. Description and adequacy of parental coping behaviours in childhood leukaemia. Int J Nurs Stud. 2005;42(3):283-96. doi: 10.1016/j.ijnurstu.2004.06.010. [PubMed: 15708015].
  • 29. Han HR, Cho EJ, Kim D, Kim J. The report of coping strategies and psychosocial adjustment in Korean mothers of children with cancer. Psychooncology. 2009;18(9):956-64. doi: 10.1002/pon.1514. [PubMed: 19117279]. [PubMed Central: PMC3056775].
  • 30. Inamdar S, Inamdar M, Gangrade A. Stress level among caregivers of thalassemia patients. Commun Med. 2015;6(4):579-82.
  • 31. Jantan AW, Muhammad SA, Mat Zain N, Abdul Rahman S, Mohamed Z, Rahim A, et al. Thalassaemia: a study on the perception of patients and family members. Med J Malaysia. 2011;66(4):326-34.
  • 32. Pouraboli B, Abedi HA, Abbaszadeh A, Kazemi M. Living in a misty marsh: A qualitative study on the experiences of self-care suffering of patients with thalassemia. Iran J Nurs Midwifery Res. 2014;19(7 Suppl 1):S77-82. [PubMed: 25949257]. [PubMed Central: PMC4402994].
  • 33. Yazdi K. Psychosocial, social and financial problems with coping strategies among families with thalassemic patients. J Gorgan Univ Med Sci. 2007;9(2):71-5.
  • 34. Kahouei M, Najarioon O, Ebrahimi N, Ahmadi F, Heydari S. A study on the preferences of parents of patients with thalassemia major in obtaining health information. Health Inf Manag. 2016;13(2):78-83.
  • 35. Mohamed M, Chong DLS, Loh CK, Zakaria SZS, Alias H, Jamal AR, et al. Parenting Stress In Malaysian Parents Of Children With Thalassaemia. Malaysian J Paediatr Child Health. 2017;23(1).
  • 36. Sananreangsak S, Lapvongwatanal P, Virutsetazin K, Vatanasomboon P, Gaylord N. Predictors of family management behavior for children with thalassemia. Southeast Asian J Trop Med Public Health. 2012;43(1):160-71. [PubMed: 23082567].
Creative Commons License Except where otherwise noted, this work is licensed under Creative Commons Attribution Non Commercial 4.0 International License .

Search Relations:

Author(s):

Article(s):

Create Citiation Alert
via Google Reader

Readers' Comments